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Annual Caregiving Conference: Engaging Caregivers in Evidence-Based Programs

The conference explores successes and challenges in the dissemination of evidence-based programs to family and friend caregivers. Keynote speaker, Erin Long, MSW, Team Lead, Alzheimer's Disease Programs Initiative of the Administration for Community Living, discusses experiences with engaging caregivers in programs and services, along with marketing strategies. Presentations also highlight experiences of organizations engaging caregivers and delivering evidence-based programs, including strategies to overcome barriers that keep caregivers from enrolling in support programs, and lessons learned through their marketing efforts.

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By David Bass, Rachel Cannon, Erin Long, Branka Primetica, Donna Barrett, Christine Jensen, Ginger Ragans, Lisa Weitzman | 01/24/2022

An older couple participating in SHARE for Dementia, and evidence-based program

Evidence-Based Programs: Why They Matter for Dementia Caregivers

 Caregivers for loved ones with dementia are familiar with the effort, dedication and time needed to provide quality care. It’s next to impossible to do on one’s own, yet asking for help and finding resources isn’t always easy. Even though it feels at times like there’s a long list of programs, services and caregiver resources out there, it may still feel like there’s nothing that fits your individual needs at the moment you need it. And even if there is, how can you know the program or service is reliable, high-quality or will even work to help you and your loved one in the first place?

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By Julie Hayes | 12/15/2021

Dementia: Using “Gems” to Uncover Clarity

This webinar led by the Hospice of the Western Reserve will explore The GEMS®: Brain Change Model, an approach to creating supportive environments for people with dementia along the course of their journey. Additionally, we will define dementia, discuss the role of care partners, explain person-centered care and teach attendees the Hand Under Hand technique to assist individuals with dementia. Lastly, you will learn from Benjamin Rose Institute on Aging about an evidence-based care-coaching program, BRI Care Consultation™, that is available for free in Cuyahoga, Athens and Washington Counties to support individuals with, or at risk of, dementia, including individuals with intellectual and developmental disabilities, and their caregivers. Please join us for this opportunity to learn more about maximizing the remaining strengths of individuals with dementia.

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By Sally Tomko | 12/02/2021

An older adult working together with a researcher

Participating in Dementia Clinical Trials and Research Studies as a Caregiver

As a dementia caregiver, you’ve most likely seen references to research studies, surveys and clinical trials when researching your loved one’s condition. Whether it’s the World Health Organization’s statistic that 55 million people around the world have dementia or the suggestion that exercise and a healthy diet can lower the risk of developing dementia, most of what we know about the disease comes from rigorous research.

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By Julie Hayes | 11/15/2021

A caregiver comforting an older adult

Sundowning and Dementia: What to do About Late-Day Behaviors

For those with dementia and their caregivers, the late day hours can often be a disorienting, stressful time. When the sun goes down, individuals with dementia may become agitated, restless, confused, irritable and at times even delirious—seeing and hearing things that are not there—to a greater extent than they do early in the day. This symptom of dementia is known as “sundowning” or “Sundowners Syndrome.” For individuals with dementia and their caregivers, it can be a scary, upsetting nightly occurrence.

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By Julie Hayes | 10/15/2021